Salud cognitiva y física de los cuidadores informales de personas mayores con demencia: Una revisión narrativa

  1. María Antonia Parra-Rizo 1
  2. Gema Sanchís-Soler 2
  1. 1 Universidad Miguel Hernández de Elche
    info

    Universidad Miguel Hernández de Elche

    Elche, España

    ROR https://ror.org/01azzms13

  2. 2 Universitat d'Alacant
    info

    Universitat d'Alacant

    Alicante, España

    ROR https://ror.org/05t8bcz72

Revista:
Revista de psicología de la salud

ISSN: 2386-2300,  0214-6118

Año de publicación: 2022

Volumen: 10

Número: 1

Tipo: Artículo

DIALNET GOOGLE SCHOLAR lock_openAcceso abierto editor

Otras publicaciones en: Revista de psicología de la salud

Resumen

The act of caring for a person with dementia has repercussions in cognitive and physical impoverishment, that generates a decline in the health of the informal caregiver, and that affects the Good performance of their tasks as a caregiver. Knowing and taking care of the cognitive and physical health of the caregiver it is of relevance from the social health care to guarantee the main support of the care for the older people with a dementia, that is, caring for the caregiver. The knowledge Will help us establish prevention programs to anticipate possible emotional problems such as depression, and physical, such as musculoskeletal injuries. The present review aims to synthesize the indicators of cognitive and physical health in informal caregivers of older people with dementia, which help to establish future intervention strategies to preserve the health of caregivers.

Referencias bibliográficas

  • Allen, A. P., Buckley, M. M., Cryan, J. F., Chorcorain, A. N., Dinan, T. G., Kearney, P. M., O’Caoimh, R., Calnan, M., Clarke, G., & Molloy, D. W. (2020). Informal caregiving for dementia patients: the contribution of patient characteristics and behaviours to caregiver burden. Age Ageing, 49(1), 52-56. https://doi.org/10.1093/ageing/afz128
  • Boutoleau-Bretonnière, C., Pouclet-Courtemanche, H., Gillet, A., Bernard, A., Deruet, A. L., Gouraud, I., Lamy, E., Mazoué, A., Rocher, L., Bretonnière, C., & Haj, M. E. (2020). Impact of confinement on the burden of caregivers of patients with the behavioral variant of frontotemporal dementia and Alzheimer disease during the CoviD-19 crisis in France [Article]. Dement Geriatr Cogn Dis Extra, 127-134. https://doi.org/10.1159/000511416
  • Bremer, P., Cabrera, E., Leino-Kilpi, H., Lethin, C., Saks, K., Sutcliffe, C., Soto, M., Zwakhalen, S. M., Wübker, A., & Consortium, R. (2015). Informal dementia care: Consequences for caregivers’ health and health care use in 8 European countries. Health Policy, 119(11), 1459-1471. https://doi. org/10.1016/j.healthpol.2015.09.014
  • Brown, M. J., & Cohen, S. A. (2020). Informal Caregiving, Poor Mental Health, and Subjective Cognitive Decline: Results From a Population-Based Sample. J Gerontol Nurs, 46(12), 31-41. https://doi.org/10.3928/00989134-20201106-04
  • De Maria, M., Tagliabue, S., Ausili, D., Vellone, E., & Matarese, M. (2020). Perceived social support and health-related quality of life in older adults who have multiple chronic conditions and their caregivers: a dyadic analysis. Soc. Sci. Med., 262, 113193. https://doi.org/10.1016/j.socscimed.2020.113193
  • Del-Pino-Casado, R., Rodriguez Cardosa, M., López-Martínez, C., & Orgeta, V. (2019). The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis. PloS one, 14(5), e0217648. https://doi.org/10.1371/journal. pone.0217648
  • Diameta, E., Adandom, I., Jumbo, S. U., Nwankwo, H. C., Obi, P. C., & Kalu, M. E. (2018). The burden experience of formal and informal caregivers of older adults with hip fracture in Nigeria. SAGE Open Nurs, 4, 2377960818785155. https:// doi.org/10.1177/2377960818785155
  • Diniz, M. A. A., Melo, B. R. d. S., Neri, K. H., Casemiro, F. G., Figueiredo, L. C., Gaioli, C. C. L. d. O., & Gratão, A. C. M. (2018). Comparative study between formal and informal caregivers of older adults. Ciencia saude coletiva, 23, 3789-3798. https://doi.org/10.1590/1413- 812320182311.16932016
  • Enright, J., O’Connell, M. E., Branger, C., Kirk, A., & Morgan, D. (2020). Identity, relationship quality, and subjective burden in caregivers of persons with dementia [Article]. Dementia, 19(6), 1855- 1871. https://doi.org/10.1177/1471301218808607
  • Farre, M., Kostov, B., Maria Haro, J., Cabrera, E., Risco, E., Alvira, M., Miguel, S., & Zabalegui, A. (2018). Costs and Burden Associated With Loss of Labor Productivity in Informal Caregivers of People With Dementia Results From Spain. J Occup Environ Med, 60(5), 449-456. https://doi. org/10.1097/jom.0000000000001229
  • Gérain, P., & Zech, E. (2021). Do informal caregivers experience more burnout? A meta-analytic study. Psychol Health Med, 26(2), 145-161. https:// doi.org/10.1080/13548506.2020.1803372
  • Gimeno, I., Val, S., & Cardoso Moreno, M. J. (2021). Relation among Caregivers’ Burden, Abuse and Behavioural Disorder in People with Dementia. Int J Environ Res Public Health, 18(3), 1263. https://doi.org/10.3390/ijerph18031263
  • Halim, H. A. H., F. M.; Yuen, C. W. . (2020). The burden of care and its health impacts on older caregivers: A scoping review. ASM Sci. J, 13(5), 162-174
  • Hampel, S. (2020). Perception of health and health-related behaviour of family caregivers of people with dementia. . Z Gerontol Geriatr, 53(1), 29-34. https://doi.org/10.1007/s00391-019-01665- 6
  • Jütten, L. H., Mark, R. E., & Sitskoorn, M. M. (2019). Empathy in informal dementia caregivers and its relationship with depression, anxiety, and burden [Article]. Int J Clin Health Psychol, 19(1), 12-21. https://doi.org/10.1016/j.ijchp.2018.07.004
  • Kaizik, C., Caga, J., Camino, J., O’Connor, C. M., McKinnon, C., Oyebode, J. R., Piguet, O., Hodges, J. R., & Mioshi, E. (2017). Factors underpinning caregiver burden in frontotemporal dementia differ in spouses and their children. J. Alzheimer’s Dis., 56(3), 1109-1117. https://doi.org/10.3233/ JAD-160852
  • Karg, N., Graessel, E., Randzio, O., & Pendergrass, A. (2018). Dementia as a predictor of care-related quality of life in informal caregivers: a cross-sectional study to investigate differences in health-related outcomes between dementia and non-dementia caregivers. BMC Geriatr, 18(1), 1-9. https://doi.org/10.1186/s12877-018-0885-1
  • Kerpershoek, L., de Vugt, M., Wolfs, C., Orrell, M., Woods, B., Jelley, H., Meyer, G., Bieber, A., Stephan, A., & Selbæk, G. (2020). Is there equity in initial access to formal dementia care in Europe? The Andersen Model applied to the Actifcare cohort. Int J Geriatr Psychiatry, 35(1), 45-52. https://doi.org/10.1002/gps.5213
  • Kontrimiene, A., Sauseriene, J., Blazeviciene, A., Raila, G., & Jaruseviciene, L. (2021). Qualitative research of informal caregivers’ personal experiences caring for older adults with dementia in Lithuania. Int J Ment Health Syst, 15(1), 1-10. https://doi.org/10.1186/s13033-020-00428-w
  • Ku, L.-J. E., Liu, L.-F., & Wen, M.-J. (2013). Trends and determinants of informal and formal caregiving in the community for disabled elderly people in Taiwan. Arch Gerontol Geriatr, 56(2), 370- 376. https://doi.org/10.1016/j.archger.2012.11.005
  • Lai, D. W. (2012). Effect of financial costs on caregiving burden of family caregivers of older adults. Sage Open, 2(4), 2158244012470467. https://doi.org/10.1177/2158244012470467
  • Lee, J., Sohn, B. K., Lee, H., jeong Seong, S., Park, S., & Lee, J.-Y. (2018). Attachment style and filial obligation in the burden of caregivers of dementia patients. Arch Gerontol Geriatr, 75, 104- 111. https://doi.org/10.1016/j.archger.2017.12.002
  • Leggett, A. N., Sonnega, A. J., & Lohman, M. C. (2020). Till death do us part: intersecting health and spousal dementia caregiving on caregiver mortality. J Aging Health, 32(7-8), 871-879. https://doi.org/10.1177/0898264319860975
  • Lindt, N., van Berkel, J., & Mulder, B. C. (2020). Determinants of overburdening among informal carers: a systematic review. BMC Geriatr, 20(1), 1-12. https://doi.org/10.1186/s12877-020-01708-3
  • Liu, S., Li, C., Shi, Z., Wang, X., Zhou, Y., Liu, S., Liu, J., Yu, T., & Ji, Y. (2017). Caregiver burden and prevalence of depression, anxiety and sleep disturbances in A lzheimer’s disease caregivers in C hina. J Clin Nurs, 26(9-10), 1291-1300. https://
  • doi.org/10.1111/jocn.13601
  • Liu, S., Liu, J., Xiao-Dan, W., Shi, Z., Zhou, Y., Li, J., Yu, T., & Ji, Y. (2018). Caregiver burden, sleep quality, depression, and anxiety in dementia care- givers: a comparison of frontotemporal lobar degeneration, dementia with Lewy bodies, and Alzheimer’s disease. Int Psychogeriatr, 30(8), 1131-1138. https://doi.org/10.1017/S1041610217002630
  • Lloyd, J., Muers, J., Patterson, T. G., & Marczak, M. (2019). Self-Compassion, Coping Strategies, and Caregiver Burden in Caregivers of People with Dementia [Article]. Clin Gerontol, 42(1), 47-59. https://doi.org/10.1080/07317115.2018.146 1162
  • Pay, N. A., Sommerich, C. M., & Lavender, S. A. (2021). Assessment of alternative methods for informal caregivers to perform patient repositioning tasks. Appl Ergon, 93, 103360. https://doi. org/https://doi.org/10.1016/j.apergo.2021.103360
  • Perpiñá-Galvañ, J., Orts-Beneito, N., Fernández-Alcántara, M., García-Sanjuán, S., García-Caro, M. P., & Cabañero-Martínez, M. J. (2019). Level of burden and health-related quality of life in caregivers of palliative care patients. International journal of environmental research public health, 16(23), 4806. https://doi.org/10.3390/ijerph16234806
  • Qadir, F., & Gulzar, W. (2013). A Pilot Study Examining the Awareness, Attitude, and Burden of Informal Caregivers of Patients With Dementia. Care Manag J, 14(4). https://doi.org/10.1891/1521- 0987.14.4.230
  • Ravyts, S. G., & Dzierzewski, J. M. (2020). Sleep Disturbance, Mental Health Symptoms, and Quality of Life: A Structural Equation Model Assessing Aspects of Caregiver Burden. Clin Gerontol, 1-10. https://doi.org/10.1080/07317115.2020.1 783042
  • Rodríguez-González, A. M., Rodríguez-Míguez, E., & Claveria, A. (2021). Determinants of caregiving burden among informal caregivers of adult care recipients with chronic illness. J Clin Nurs. https://doi.org/10.1111/jocn.15683
  • Sanchis Soler, G., Saninocencio, D., Soriano, P. L., & Blasco Lafarga, C. (2021). Reducción de la sobrecarga del cuidador tras entrenamiento supervisado en ancianos pluripatológicos y paliativos. Cuad. de Psicol. del Deporte, 21(1), 271-281.
  • Sandoval, F., Tamiya, N., Lloyd-Sherlock, P., & Noguchi, H. (2019). The relationship between perceived social support and depressive symptoms in informal caregivers of community-dwelling older persons in Chile. Psychogeriatrics, 19(6), 547-556. https://doi.org/10.1111/psyg.12438
  • Seidel, D., & Thyrian, J. R. (2019). Burden of caring for people with dementia–comparing family caregivers and professional caregivers. A descriptive study. J Multidiscip Healthc, 12, 655. https:// doi.org/10.2147/JMDH.S209106
  • Shakiba Zahed, M. E., Eslami, A. A., Barekatain, M., Hassanzadeh, A., & Zamani-Alavijeh, F. (2020). Stress as a challenge in promoting mental health among dementia caregivers. J Educ Health Promot., 9. https://doi.org/10.4103/jehp. jehp_445_19
  • Sołtys, A., & Tyburski, E. (2020). Predictors of mental health problems in formal and informal caregivers of patients with Alzheimer’s disease. BMC psychiatry, 20(1), 1-11. https://doi. org/10.1186/s12888-020-02822-7
  • Stensletten, K., Bruvik, F., Espehaug, B., & Drageset, J. (2016). Burden of care, social support, and sense of coherence in elderly caregivers living with individuals with symptoms of dementia [Article]. Dementia, 15(6), 1422-1435. https://doi. org/10.1177/1471301214563319
  • Tan, G. T. H., Yuan, Q., Devi, F., Wang, P., Ng, L. L., Goveas, R., Chong, S. A., & Subramaniam, M. (2021). Factors associated with caregiving self-efficacy among primary informal caregivers of persons with dementia in Singapore. BMC Geriatr, 21(1), 1-11. https://doi.org/10.1186/s12877-020- 01951-8
  • Taranrød, L. B., Eriksen, S., Pedersen, I., & Kirkevold, Ø. (2020). Characteristics, burden of care and quality of life of next of kin of people with dementia attending farm-based day care in Norway: A descriptive cross-sectional study [Article]. J Multidiscip Healthc, 13, 1363-1373. https://doi. org/10.2147/JMDH.S268818
  • Tsai, C.-F., Hwang, W.-S., Lee, J.-J., Wang, W.F., Huang, L.-C., Huang, L.-K., Lee, W.-J., Sung, P.-S., Liu, Y.-C., & Hsu, C.-C. (2021). Predictors of caregiver burden in aged caregivers of demented older patients. BMC Geriatr, 21(1), 1-9. https://doi. org/10.1186/s12877-021-02007-1
  • Viñas-Díez, V., Conde-Sala, J. L., Turró-Garriga, O., Gascón-Bayarri, J., & Reñé-Ramírez, R. (2019). Depressive symptoms and burden in family caregivers in Alzheimer’s disease: A model of structural equations [Article]. Rev Neurol, 69(1), 11-17. https://doi.org/10.33588/rn.6901
  • Vullings, I., Labrie, N., Wammes, J. D., de Bekker-Grob, E. W., & MacNeil-Vroomen, J. (2020). Important components for Dutch in-home care based on qualitative interviews with persons with dementia and informal caregivers. Health Expect, 23(6), 1412-1419. https://doi.org/10.1111/ hex.13118
  • Wulff, J., Fänge, A. M., Lethin, C., & Chiatti, C. (2020). Self-reported symptoms of depression and anxiety among informal caregivers of per- sons with dementia: a cross-sectional comparative study between Sweden and Italy. BMC Health Serv Res, 20(1), 1-15. https://doi.org/10.1186/ s12913-020-05964-2
  • Xian, M., & Xu, L. (2019). Social support and self-rated health among caregivers of people with dementia: The mediating role of caregiving burden [Article]. Dementia. https://doi. org/10.1177/1471301219837464
Fuente de los datos: Dialnet