¿De qué se habla en los foros de Internet para problemas de salud?análisis de contenido en función de la enfermedad y el sexo

  1. Suriá Martínez, Raquel
  2. Beléndez Vázquez, Marina
Revista:
Acción psicológica

ISSN: 1578-908X

Ano de publicación: 2010

Título do exemplar: Psicología e internet

Volume: 7

Número: 1

Páxinas: 41-51

Tipo: Artigo

DOI: 10.5944/AP.7.1.206 DIALNET GOOGLE SCHOLAR

Outras publicacións en: Acción psicológica

Resumo

In recent years, Internet has made possible the emergence and consolidation of a new form of interpersonal communication such as the discussion among members of health related bulletin boards or discussion forums. One of the more fruitful research work is aimed to analyze the content of the exchanged messages among participants. The present work analyzes the frequency of the topics in the messages that are exchanged among users of internet discussion forums for health problems by sex and illness. A total of 756 postings of participants in four Spanish-speaking internet bulletin boards were analyzed (diabetes, fibromyalgia, sclerosis and asthma). Each posting was analyzed for the presence or absence of 15 coding categories subsumed under four broad categories (social support, illness and treatment issues, interpersonal issues and expression of emotions). Postings regarding giving informational support and instrumental support were more frequent at diabetes discussion board. Expressions of positive emotions (optimism and gratitude) were predominately found on fibromyalgia boards. Differences by sex were only found in some categories and in some forums.

Referencias bibliográficas

  • Abásolo, F., Méndez, F. X. y Ortigosa, J. M. (2003). Intervención psicológica en el asma bronquial infantil. En J. M. Ortigosa, M. J. Quiles y F. X. Méndez (Eds.), Manual de Psicología de la salud con niños, adolescentes y familias (pp. 183-196). Madrid: Pirámide.
  • Anderberg, P. (2007). Peer assistance for personal assistance: Analysis of online discussions about personal assistance from a Swedish Web forum for disabled people. Disability y Society, 22, 251-265.
  • Bar-Lev, S. (2008). «We are here to give you emotional support»: Performing emotions in an online HIV/AIDS support group. Qualitative Health Research, 18, 509-521.
  • Barak, A. y Gluck-Ofri, O. (2007). Degree and reciprocity of self-disclosure in online forums. CyberPsychology y Behavior, 10, 407–417.
  • Beléndez, M., Marín, M.C.; Lorente, I., Hurtado, F.J. y Sanz, O. (November, 2008). Coping strategies and well-being in parents of children with diabetes: gender differences. Presented at the Congress on Therapeutic Patient Education 2008. Budapest, Hungary.
  • Beléndez, M y Suriá, R. (2008, Noviembre). Promoting patient empowerment via the internet: an analysis of discussion forums for patients with chronic conditions. Póster presentado en Congress on Therapeutic Patient Education. Budapest, Hungría.
  • Blank, T. O. y Adams-Blodnieks, M. (2007). The who and the what of usage of two cancer online communities. Computers in Human Behavior, 23, 1249-1257.
  • Braithwaite, D. O., Waldron, V.R. y Finn, J. (1999). Communication of social support in computermediated groups for people with disabilities. Health Communication, 11(2),123 -151.
  • Cline, R. J. W. y Haynes, K. M. (2001). Consumer health information seeking on the Internet: the state of the art. Health Education Research, 16(6), 671-692.
  • Coulson, N. S. (2005). Receiving social support online: An analysis of a computer-mediated support group for individuals living with irritable Bowel syndrome. CyberPsychology & Behavior, 8, 580-584.
  • Dalheim-Englund, A. C., Rydstrom, I., Rasmussen, B. H., Moller, C. y Sandman, P. O. (2004). Having a child with asthma quality of life for Swedish parents. Journal of Clinical Nursing, 13, 386-95.
  • Davison, K. P. y Pennebaker, J. W. (1997). Virtual narratives: Illness representations in online support groups. En K. J. Petrie y J. Weinman (Eds.), Perceptions of health and illness: Current research and applications (pp 463-486). London: Harwood Academic Press.
  • Davidson, K., Pennebaker, J. W. y Dickeson, S. (2000). Who talks? The social psychology of illess groups. American Psychologist, 55(2), 205-217.
  • Demiris, G. (2006). The diffusion of virtual communities in health care: Concepts and challenges. Patient Education and Counseling, 62(2), 178-188.
  • Eagly, A. H. y Crowley, M. (1986). Gender and helping behaviour: a meta-analytic review of the social psychological literature. Psychological Bulletin, 100 (3), 283-308.
  • Fallow, D. (2005). How women and men use the Internet. Obtenido 10 de abril, 2007, de Pew Internet y American Life Project. http://www.pewInternet.org/pdfs/PIP_Women_and_Men_online.pdf.
  • Finn, J. (1999). An exploration of helping processes in an online self-help groupfocusing on issues of disability. Health and Social Work, 24, 220-231.
  • Ginossar, T. (2008). Online participation: A content analysis of differences in utilization of two on- line cancer communities by men and women, patients and family members. Health Communication, 23, 1-12.
  • Gooden, R. J. y Winefield, H. R. (2007). Breast and prostate cancer online discussion boards: a thematic analysis of gender differences and similarities. Journal of Health Psychology, 12, 103-114.
  • Gray R.E., Fitch M., Davis C. y Phillips C. (1996). Breast cancer and prostate cancer self-help groups: reflections on differences. Psycho-oncology. 5, 137–142.
  • Klemm, P., Hurst, S. L., Dearholt, S. y Trone, R. (1999). Gender differences on Internet cancer support groups, Computers in Nursing, 17, 65–72.
  • Lasker, J., Sogolow, D. y Sharim, P. (2005). The role of an online community for people with a rare disease: content analysis of messages posted on a primary biliary cirrhosis mailing list. Journal of Medical Internet Research, 31, 7-10.
  • Macias, W., Stavchansky, L. y Smith, T. (2005). Health related message boards discussion content and implications for pharmaceutical sponsorships. Journal of Health Communication, 10 (3), 209-223.
  • Maccoby, E. E. (1990). Gender and relationships: A developmental account. AmericanPsychologist, 45, 513-520.
  • Marín, M. C., Salaverría, V., Beléndez, M. y Suriá, R. (2009, Octubre). A website about diabetes in children and adolescents: interactive contents and evolution. Comunicación presentada al 20th World Diabetes Congress. Montreal.
  • Mehl, M. R. y Pennebaker, J. W. (2003). The sounds of social life: A psychometric analysis of students daily social environments and natural conversations. Journal of Personality and Social Psychology, 84, 857-870.
  • Mo, P. K. H., Sumaira, S. H. y Coulson, N. S. (2009). Gender differences in computer-mediated com- munication: a systematic literature review of online health-related support groups. Patient Education and Counseling, 75, 16-24.
  • Moral, F., Canto, J. y Gómez-Jacinto, L. (2004). Internet y desindividuación. Nuevas perspectivas sobre la desindividuación en la red: el modelo de identidad social de los fenómenos de desindividuación (SIDE). Revista de Psicología Social, 19(1), 93-106.
  • Perron, B. (2002). Online support for caregivers of people with a mental illness.Psychiatric Rehabilitation Journal, 26, 70-77.
  • Pennebaker, J. W. y King, L. A. (1999). Linguistic styles: Language use as an individual difference. Journal of Personality and Social Psychology, 77, 1296-1312.
  • Ravert, R. D., Hancock, M. D. y Ingersoll, G. M. (2004). Online forum messages posted by adolescents with type I diabetes. The Diabetes Educator, 30, 27-834.
  • Rourke, L., Anderson, T., Garrison, D. R., y Archer, W. (2001). Methodological issues in the content analysis of computer conference transcripts. International Journal of Artificial Intelligence in Education, 12, 8–22.
  • Salem, D. A., Bogat, G. A. y Reid, C. (1997). Mutual help goes on-line. Journal of Community Psychology, 25, 189-207.
  • Savicki, V., y Kelley, M. (2000). Computer mediated communication: Gender and group composition. CyberPsychology & Behavior, 3(5), 817-826.
  • Seale C, Ziebland S, y Charteris-Black, J. (2006). Gen- der, cancer experience and internet use: A comparative keyword analysis of interviews and online cancer support groups. Social Science and Medicine, 62, 2577-2590.
  • Sharf, B. F. (1999). Beyond Netiquette: the ethics of doing naturalistic discourseresearch on the In- ternet. En Jones, S. (Ed.), Doing Internet Research: Critical Issues and Methods for Examining the Net (pp. 243-256). Sage Publications: Newbury Park, CA.
  • Schultz, P. N., Stava, C., Beck, M. L., y VassilopoulouSellin, R. (2003). Internet message board use by patients with cancer and their families. Clinical Journal of Oncology Nursing, 7, 663-667.
  • Sullivan, F. C. (2003). Gendered cybersupport: a thematic analysis of two online cancer support groups. Journal of Health Psychology, 8 (1), 83-103.
  • Suriá, R. y Beléndez, M. (2006, Septiembre). Análisis de los grupos de salud en Internet: un estudio a través del contenido de sus narraciones. Póster presentado en VI Semana de Investigación de la Facultad de Psicología de la UNED. Madrid.
  • Tennen, H., y Affleck, G. (1997). Social comparison as a coping process: A critical review and application to chronic pain disorders. En B.P. Buunk y F.X. Gibbons, (Eds). Health, coping, and well-being: Perspectives from social comparison theory. (pp. 263-298). Mahwah, NJ, US: Lawrence Erlbaum Associates Publishers.
  • Undeland, M., y Malterud, K. (2007). The fibromyalgia diagnosis-hardly helpful for the patients? Scandinavian Journal of Primary Health Care, 25(4), 250-255.
  • Van Uden-Kraan C. F., Drossaert C. H. C., Taal E., Lebrun, C. E. I., Drossaers-Bakker, K.W. Smit, W. M., Seydel E. R. y Van de Laar M. A. F. J. (2008). Coping withsomatic illnesses in online support groups. Do the feared disadvantages actuallyo c cur? Computers in Human Behavior, 24, 309-24.
  • Walther, J. B., y Boyd, S. (2002). Attraction to computer-mediated social support. En C. A. Lin y D. Atkin (Eds.), Communication technology and society: Audience adoption and uses (pp. 153-188). Cresskill, NJ: Hampton Press.
  • Weare, C., y Lin, W. Y. (2000). Content analysis of the world wide web: Opportunities and challenges. Social Science Computer Review, 18(3), 272.
  • Winefield, R. (2005). Support provision and emotional work in an Internet support group for cancer patients. Health Psychology, 12 (1), 103-114.
  • Winzelberg, A. J. (1997). The analysis of an electronic support group for individuals with eating disorders. Computers in Human Behavior, 13, 393-407.
  • Zahn-Waxler, C., Radke-Yarrow, M., Wagner, E. y Chapman, M. (1992). Development of concern for others. Developmental Psychology, 28, 126-136.
Fonte de datos: Dialnet