Apoyo a un «click» de ratónlos foros de Internet para problemas de salud

  1. Beléndez Vázquez, Marina
  2. Suriá Martínez, Raquel
Revista:
Acción psicológica

ISSN: 1578-908X

Año de publicación: 2010

Título del ejemplar: Psicología e internet

Volumen: 7

Número: 1

Páginas: 17-29

Tipo: Artículo

DOI: 10.5944/AP.7.1.202 DIALNET GOOGLE SCHOLAR

Otras publicaciones en: Acción psicológica

Resumen

El uso de foros de discusión en internet constituye una actividad cotidiana para un porcentaje importante de personas que sufre algún problema de salud. Los usuarios de foros intercambian experiencias con otros participantes desconocidos con los que llegan a compartir vivencias y sentimientos con un elevado grado de intimidad. Las peculiaridades de la comunicación mediada por ordenador hacen de los foros de Internet una alternativa de comunicación atractiva para muchos afectados por algún problema de salud, o para sus familiares. Además de la disponibilidad las 24 horas o la eliminación de barreras geográficas, la investigación existente sugiere una serie de características únicas de estos foros como son: la posibilidad de expresarse mejor que en ambientes cara a cara, el acceso a una cantidad de información sobre salud más heterogénea y variada, la posibilidad de desvelar información personal e íntima sobre la propia salud con menor riesgo que en los grupos cara a cara o el valor terapéutico de la revelación personal en formato escrito sobre los problemas de salud. Aunque ya existen evidencias de los efectos beneficiosos del uso de foros en el bienestar de sus usuarios, todavía se necesitan estudios más detallados y controlados.

Referencias bibliográficas

  • Anderson, B. J. y Coyne, J. C. (1991). «Miscarried helping» in the families of children and adolescents with chronic diseases. En J.H. Johnson y S.B. Johnson (Eds.), Advances in Child Health Psychology (pp. 167-177). Gainesville, Fla.: University of Florida Press.
  • Arora, N. K, Rutten, L. J. F., Gustafson, D. H., Moser, R. y Hawkins, R. P. (2007). Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer. Psycho-Oncology, 16, 474-486.
  • Baikié, K. A. y Wilhelm, K. (2005). Emotional and physical health benefits of expressive writing. Advances in Psychiatric Treatment, 11, 338-346.
  • Bargh, J. A., Fitzsimons, G. M. y McKenna, K. Y. A. (2003). The self, online. En S. J. Spencer, S. Fein, M. P. Zanna y J. M. Olson (Eds.), Motivated social perception: The Ontario symposium on personality and social psychology (pp. 195-213). Mahwah, NJ: Lawrence Erlbaum Associates Publishers.
  • Barrón, A., (1996). Apoyo Social: Aspectos teóricos y Aplicaciones, Madrid: Siglo XXI.
  • Beléndez, M. y Suriá, R. (2006, Agosto). Social support and illness perceptions among users of online communities. Poster presentado en el 20th Annual Conference of the European Health Psychology Society, Varsovia, Polonia.
  • Ben-Ze’ev A. (2004). Love Online: Emotions on the Internet. Cambridge: Cambridge University Press.
  • Berger, M., Wagner, T. H. y Baker, L. C. (2005). Internet use and stigmatized illness, Social Science y Medicine, 61, 821-1827.
  • Christopherson, K. M. (2007). The positive and negative implications of anonymity in Internet social interactions: «On the internet, nobody knows you’re a dog». Computers in Human Behavior, 23, 3038-3056.
  • Cline, R. J. W. y Haynes, K. M. (2001). Consumer health information seeking on the Internet: the state of the art. Health Education Research, 16(6), 671-692.
  • Cohen, S. (2004). Social relationships and health. American Psychologist, 59, 676-684.
  • Contrada, R. J. y Ashmore, R. D. (1999). Self and social identity: key to understanding social and behavioral aspects of physical health and disease? En R. J. Contrada y R. D. Ashmore (Eds.), Self, social identity and physical health (pp. 3-23). Londres: Oxford University Press.
  • Cuijpers, P., van Straten, A. y Andersson (2008). Internet-administered cognitive behavior therapyfor health problems: a systematic review. Journal of Behavioral Medicine, 31, 169-177.
  • Cutrona, C. E. (1990). Stress and social support. In search of optimal matching. Journal of Social and Clinical Psychology, 9, 3-14.
  • Cutrona, C. E. y Russell, D. (1990). Type of social support and specific stress: Toward a theory of optimal matching. En I.G. Sarason, B.R. Sarason, y G.R. Pierce (Eds.), Social support: An interactional view (pp. 319-366). New York: Wiley.
  • Daft, R. L. y Lengel, R. H. (1986). Infomation rich- ness: A new approach to managerial behavior and organizational design. En B. Straw y L. Cummings (Eds.), Research in organizational behavior (pp. 191-223). Greenwich, CT: JAI.
  • Davison, K. P. y Pennebaker, J. W. (1997). Virtual narratives: Illness representations in online support groups. En K. J. Petrie y J. Weinman (Eds.), Perceptions of health and illness: Current research and applications (pp. 463-486). London: Harwood Academic Press.
  • Davison, K. P., Pennebaker, J.W. y Dickerson, S. S. (2000). Who talks? The social psychology of illness groups. American Psychologist, 55(2), 205-217.
  • DuPertuis, L., Aldwin, C. y Bosse, R. (2001). Does the source of support matter for different health outcomes? Findings from the Normative Aging Study. Journal of Aging and Health, 13, 494-510.
  • Esquivel, A., Meric-Bernstam, F. y Bernstam, E.V. (2006). Accuracy and self correction of information received from an internet breast cancer list: content analysis. BMJ, 332, 939-942.
  • Eysenbach, G. y Köhler, C. (2004). Health-related searches on the internet. JAMA, 291, 29-46.
  • Frattaroli, J. (2006). Experimental disclosure and its moderators: A meta-analysis. Psychological Bulletin, 132, 823-865.
  • Frisina, P. G., Borod, J. C. y Lepore, S. J. (2004). A meta-analysis of the effects of written emotional disclosure on the health outcomes of clinical populations. The Journal of Nervous and Mental Disease, 192, 629-34.
  • Granovetter, M. S. (1973). The strength of weak ties. American Journal of Sociology, 78(6), 1360-1380.
  • Harris, A. H. (2006). Does expressive writing reduce health care utilization? A meta-analysis of randomized trials. Journal of Consulting and Clinical Psychology, 74, 243-52.
  • Hoch, D. B., Norris, D., Lester, L. E. y Marcus, A. D. (1999). Information exchange in an epilepsy forum on the world wide web. Seizure, 8, 30-34.
  • Holmes, T. H. y Rahe, R. H. (1967). The social readjustment rating scale. Journal of Psychosomatic Research, 11, 213-218.
  • Houston, T. K., Cooper, L. A. y Ford, D. E. (2002). Internet support groups for depression: A 1 year prospective cohort study. American Journal of Psychiatry, 159, 2062-2068.
  • Iafusco, D., Ingenito, N. y Prisco, F. (2000). The chat line as a communication and educational tool in adolescents with insulin-dependent diabetes: preliminary observations. Diabetes Care, 23, 1853.
  • Jiménez, J. (2007). Tendencias en el uso de Internet como fuente de información sobre salud. En: E. Hernández y B. Gómez-Zúñiga. Intervención en salud en la Red. UOC, 4. Obtenido el 26 de enero de 2008 en http://www.uoc.edu/uocpapers/4/ dt/esp/jimenez.pdf
  • Johnsen, J. A. K. y Gammon, D. (2009). Connecting with ourselves and others online: Psychological aspects of online health communication. En E. V. Wilson (Ed.), Patient-Centered e-Health (pp. 26- 46). Hershey, PA: IGI Global Publishing.
  • Joinson, A. N. (2001). Self-disclosure in computermediated communication: The role of self-awareness and visual anonymity. European Journal of Social Psychology, 31, 177-192.
  • Kelly, A. E., Klusas, J. A., von Weiss, R. T. y Kenny, C. (2001). What is it about revealing secrets that is beneficial? Personality and Social Psychology Bulletin, 27, 651-665.
  • Kiesler, S., Siegal, J. y McGuire, T. W. (1984). Social psychological aspects of computer mediated communication. American Psychologist, 39, 1123- 1134.
  • Lieberman, M. A., y Goldstein, B. A. (2006). Not all negative emotions are equal: the role of emotional expression in online support groups for women. Psycho-Oncology, 15, 160-168.
  • McKenna, K. Y. A., Green, A. y Gleason, M. (2002). Relationship formation on the Internet: What’s the big attraction? Journal of Social Issues, 58, 9-31.
  • Mogk, C., Otte, S., Reinhold-Hurley, B. y Kröner-Herwig, B. (2006, Noviembre). Health effects of ex- pressive writing on stressful or traumatic experi- ences a meta-analysis. GMS-Psycho-SocialMedicine. Obtenido de http://www.ncbi.nlm. nih.gov/pmc/articles/PMC2736499/
  • Moral, F., Canto, J. M. y Gómez-Jacinto, L. (2004). Internet y desindividuación. Nuevas perspectivas sobre desindividuación en la red: el modelo de identidad social de los fenómenos de desindividuación. Revista de Psicología Social, 19, 93- 106.
  • Nyklicek, I., Vingerhoets A. y Denollet J. (2002). Emotional (non)-expression and health: Data, questions, and challenges. Psychology and Health, 17(5), 517-528.
  • Pennebaker, J. W. (1997). Writing about emotional experiences as a therapeutic process. Psychological Science, 8, 162-166.
  • Pennebaker, J. W., y Beall, S. K. (1986). Confronting a traumatic event: Toward an understanding of inhibition and disease. Journal of Abnormal Psychology, 95, 274-281.
  • Pennebaker, J., Kiecolt-Glaser, J. y Glaser, R. (1988). Disclosure of traumas and immune function: health implications for psychotherapy. Journal of Consulting and Clinical Psychology, 56, 638-639.
  • Pennebaker, J. W. y Seagal, J. D. (1999). Forming a story: The health benefits of narrative. Journal of Clinical Psychology, 55 (10), 1243-1254.
  • Pew Internet and American Life Project (2006, Marzo). Online dating. Obtenido el 20 de diciembre de 2009 en http://www.pewinternet.org/Reports/ 2006/Online-Dating.aspx.
  • Powell, J., McCarthy, N. y Eysenbach, G. (2003). Cross-sectional survey of users of Internet depression communities. BMC Psychiatry, 10, 3-19.
  • Reeves, P. M. (2001). How individuals coping with HIV/AIDS use the internet. Health Education Research, 16(6), 709-719.
  • Reicher, S., Spears, R. y Postmes, T. (1995). A social model of deindividuation phenomena. Eurpean Review of Social Psychology, 6, 161-199.
  • Schwarzer, R. y Leppin, A. (1989). Social support and health: A meta-analysis. Psychology and Health, 3, 1-15.
  • Sloan, M. D. y Marx, B. (2004). Taking pen to hand: evaluating theories underlying the written disclosure paradigm. Clinical Psychology: Science and Practice, 11, 2-9.
  • Smyth, J. M. (1998). Written emotional expression: ef- fects, sizes, outcome types and moderating variables. Journal of Consulting and Clinical Psychology, 66, 174-184.
  • Stanton, A. L., Revenson, T. A. y Tennen, H. (2007). Health psychology: psychological adjustment to chronic disease. Annual Review of Psychology, 58, 565-92.
  • Suler, J. (2004). The online disinhibition effect. Cyberpsychology y Behavior, 7, 321-326.
  • Suriá, R. (2008). Foros virtuales para personas con enfermedades crónicas: Un análisis psicosocial. Tesis doctoral no publicada, Universidad de Alicante, Alicante.
  • Tanis, M. (2007). Online social support groups. En A. Joinson, K. McKenna, T. Postmes, y U. D. Reips (Eds.), The Oxford handbook of internet psychology (pp. 139-154). New York: Oxford University Press.
  • Tanis, M. (2008). Health-related on-line forums: What’s the big attraction? Journal of Health Communication, 13, 698-714.
  • Thurlow, C., Lengel, L. y Tomic, A. (2004). Computer mediated communication: Social interaction and the Internet. London: Sage.
  • Turner, J. W., Grube, J. A. y Meyers, J. (2001). Devel- oping an optimal match within online communities: An exploration of CMC support communities and traditional support. Journal of Communication, 51(1), 231-251.
  • Van Uden-Kraan, C. F., Drossaert, C. H. C., Taal, E., Lebrun, C. E. I., Drossaers-Bakker, K. W. Smit, W. M., Seydel, E. R. yVan de Laar, M. A. F. J. (2008). Coping with somatic illnesses in online support groups. Do the feared disadvantages actually occur? Computers in Human Behavior, 24, 309-24.
  • Walther, J. B. (1992). Interpersonal effects in computer-mediated Interaction: A relational perspective. Communication Research, 19 (1), 52-90.
  • Walther, J. B. (1996). Computer-mediated communication: Impersonal, interpersonal and hyperpersonal interaction. Communication Research, 23, 3-43.
  • Walther, J. B. y Boyd, S. (2002). Attraction to computer-mediated social support. En C. A. Lin y D. Atkin (Eds.), Communication technology and society: Audience adoption and uses (pp. 153-188). Cresskill, NJ: Hampton Press.
  • Weinberg, N., Schmale, J., Uken, J. y Wessel, K. (1996). On-line help: Cancer patients participate in a computer-mediated support group. Health and Social Work, 21(1), 24-29.
  • Wright, K. (2000). Computer-mediated social support, older adults, and coping. Journal of Communication, 50, 100-118.
  • Wright, K. (2002). Social support within an on-line cancer community: An assessment of emotional support, perceptions of advantages and disadvantages and motives for using the community from a communication perspective. Journal of Applied Communication Research, 30, 195-209.
  • Wright, K. B., y Bell, S. B. (2003). Health-related support groups on the internet: Linking empirical findings to social support and computer-mediated communication theory. Journal of Health Psychology, 8, 39-54.